5 Years Old | Tennessee, USA
Malachi was doing everything on time walking, talking, crawling and then at 15 months old he could no longer do those things. We were referred to a neurologist and began taking genetic testing! We did about 2-3 genetic tests and the last one is when he was diagnosed with INAD.
It has impacted our lives to see our loved ones decline so quickly! I had to lose my job of 7 years to care for him full time for 3 years until we got nursing. As a mom it tears us down mentally, physically!
Getting read to and listening to gospel music
Shaved ice because he is tube fed
He don’t have a favorite but books about the ocean.
Through God anything is possible
He is a fighter and he loves God
They love their brother and my middle child says she is his mommy!!!