Contact Us at (201) 274–5204

Remembering Our Superstars

We will always remember the INAD Superstars we have loved and lost. We honor their memories by remaining steadfast in our mission to find treatments and a cure for Infantile Neuroaxonal Dystrophy (INAD) and other forms of PLA2G6-related neurodegeneration (PLAN). Visit the pages below to learn more about the legacy and impact of each of these beloved Superstars.

Every family’s journey with INAD/PLAN is important to share and we thank you for sharing your story with us! This is a place to share the memories you hold dear and to share your child’s legacy with the community. Click here to submit your story!

Mauria M.

Mauria M.

Connecticut, USA

Memorial Page

Memorial Page

Memorial Page

To share your child’s memory with us, fill out our Memorial Submission Form