Contact Us at (201) 274–5204

Our Superstars

The INADcure Foundation works to increase knowledge and awareness of Infantile Neuroaxonal Dystrophy (INAD), and all of our INAD families have an important role to play. INAD is a complicated neurodegenerative disorder, but these stories help us better explain what INAD is and how it impacts hundreds of children and their loved ones around the world. Every family’s journey with INAD is important to share and we thank you for sharing your story with us!

Click here to submit your story!

Ariya P.

7 Years Old | Fairfield, NJ

Jackson S.

8 Years Old | Madison, NC

Zoe H.

5 Years Old | England

Kari Celin A.C.

8 Years Old | Oslo, Norway

Jasper Valentijn V.

9 Years Old | Netherlands

Nico - Spain

Nico R.

4 Years Old | Madrid, Spain

Alice - Brazil

Alice M.

3 Years Old | Brazil

Viktor V.

7 Years Old | Antwerp, Belgium

Jade D.

6 Years Old | Baton Rouge, LA


4 Years Old | Texas, USA



To share your child’s story with us fill out our Child Stories Form